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Mary Brantley and her husband Nate were overjoyed when their twins were born healthy at 37 weeks, but within hours their son Ransom experienced respiratory distress, a moment that marked the beginning of their journey with Laryngomalacia and Oropharyngeal Dysphagia. Mary Brantley writes honestly about the ups and downs of their story and the hope that has carried them every step of the way.
Read MoreUnexpectedly, Bethany and Drew learned that their son had experienced a brain bleed — a cavernous hemangioma rupture or pediatric stroke. Although fears and uncertainties hit them like tidal waves, they relied on community and faith to anchor their hearts and minds through the toughest days. Their story of courageously fighting for hope is filled with both hope and wisdom.
Read MoreThe tone in operating room quickly switched from light and airy to hushed after the birth of the Hott’s second daughter. The Hotts were soon told that their daughter had a large birthmark, a Giant Congenital Melanocytic Nevus that occurs approximately once in every 500,000 births. When Rob was allowed to see his daughter, he was surprised to see that the birthmark covered most of their daughter's back and wrapped to the front of her body around her neck and arms. In her first hours of life, Addie was also diagnosed with a rare neurological condition: Neurocutaneous Melanosis. When asked what hope looks like for their family, the Hotts share a perspective that is deeply rooted in personal faith, as well as an awareness of the realities their daughter will face moving forward.
Read MoreAn in utero stroke weakened the left side of Emeril's body, causing cerebral palsy. She and her parents share about how they’ve adapted to life along their journey. While they have faced countless frustrations, challenges, and setbacks, they have also found joy in their story and been able to face the seasons with hope and faith.
Read MoreAs we’ve gotten to know Ilya and his dad, Todd, we’ve been impacted by their deep and genuine hope and transparency in dealing with the unexpected difficulties of life. We recently had the honor of sitting down with them to get the latest updates on how life with neurofibromatosis type II is going. Their story is truly an inspiration. You can read part one of their story here.
Read MoreOne of our greatest honors is telling the stories of families who are walking through challenges with hope. Chris and Chrissy are no exception. Their determination to seek and find the best in each other and their children inspires us, and we are so thrilled to introduce you to them today.
Read MoreWe had the privilege of serving alongside Ilya during our week with the Cornerstone Preparatory IMPACT team. We were aware that he was walking through medical challenges, but through the course of the week, we watched him serve countless families. His refusal to be a victim of his own medical diagnosis (Neurofibromatosis Type II) was a contagious inspiration for us. By the end of the week, Ilya approached us and said that he was ready and interested in sharing his story on the blog. It has been an honor to get to know Ilya and his dad, Todd, and share their journey of hope with you.
Read MoreThe more people we meet, the more I am convinced that hope is contagious. There really is something powerful about bringing hope and love to another person. Hope inspires hope. One of my favorite parts about Jackson’s story is that when he and his family had run out of hope, someone else stepped in and hoped for them with a love so powerful that it has changed the course of their family’s life.
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Supporting families facing a childhood diagnosis.
![Neurofibromatosis Type II: Ilya’s Story of Hope [Part 2]](https://images.squarespace-cdn.com/content/v1/5d3a161fab57400001d7bc50/1566960523077-VLAMS0E6BYWWBNL0GY37/Layton-2.jpg)
