Posts in Stories
Spinal Muscular Atrophy: The Jones Family’s Story of Hope

We had the pleasure of meeting Ashley and Kyle recently after several people told us how much we would love connecting with them. Their reputation preceded them, and we were so grateful to talk with them about their journey through parenthood, caring for and making decisions for their terminally ill daughter, and holding onto their marriage after their devastating loss. After hearing them humbly share their hearts, we were struck by their strength and the fact that they are fighters, fiercely devoted, and selfless. It is our honor and privilege to introduce you to them and share about their beautiful little girl who they loved so well.

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Congenital Hypothyroidism: Eleanor’s Story of Hope

It is so fun to introduce you to some friends of ours, the Harman family. Anyone who knows Tim and Bethany would agree that they are servant-hearted, kind, loyal, and full of faith, and all of those qualities come through when you look at the way they love each other, parent their children, and walk through difficult days—including their daughter's unexpected diagnosis of congenital hypothyroidism. We absolutely adore this family and are so honored to share their story here.

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EoE Treatment Update: Hope in the Midst of Tough Decisions

As a parent, one of the most challenging parts of walking your children through medical difficulty is the decisions that need to be made. We’ve been in the thick of it for a few months regarding a decision we had to face with Audra’s eosinophilic esophagitis (EoE) treatment and have been asking ourselves these questions: How do you make a choice between multiple options that will have an unknown impact on your child? How do you make wise decisions without doubting or second-guessing yourself down the road? How do you deal with the sometimes crippling fear of not making the “right” decision?  

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Neurofibromatosis Type II: Ilya’s Story of Hope

We had the privilege of serving alongside Ilya during our week with the Cornerstone Preparatory IMPACT team. We were aware that he was walking through medical challenges, but through the course of the week, we watched him serve countless families. His refusal to be a victim of his own medical diagnosis (Neurofibromatosis Type II) was a contagious inspiration for us. By the end of the week, Ilya approached us and said that he was ready and interested in sharing his story on the blog. It has been an honor to get to know Ilya and his dad, Todd, and share their journey of hope with you.

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Oppositional Defiant Disorder (ODD), Attention Deficit Hyperactivity Disorder (ADHD), and Sensory Processing Disorder (SPD): Jackson’s Story of Hope

The more people we meet, the more I am convinced that hope is contagious. There really is something powerful about bringing hope and love to another person. Hope inspires hope. One of my favorite parts about Jackson’s story is that when he and his family had run out of hope, someone else stepped in and hoped for them with a love so powerful that it has changed the course of their family’s life.

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Autism: Teagan’s Story of Hope

Nearly three years ago, shortly after their tenth anniversary, Kimber and Matt traveled to China on a much anticipated trip to adopt their two children, Teagan and Bennett, now six and five years old. Their family’s adventure has been filled with difficulty, love, and hope, and it is an honor to share a glimpse into their journey. 

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Down Syndrome and Leukemia: Claire's Story of Hope

It’s raining as I type this, and as I listen to the heavy drops falling outside my window, I’m reminded of the parable in Matthew 7 that Jesus tells about the wise man who builds his house on the rock. The storm came, and the wind blew and beat upon the house, and yet it did not fall. The foolish man built his house on the sand, and when the storm came, the wind blew and beat against the house, and it collapsed. And great was its collapse. John and Caroline’s journey of parenting their daughter with Down Syndrome and leukemia has been marked by a solid foundation.

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Synovial Cell Sarcoma: Abby Smith's Story and Hope

Some stories are so compelling that you could read or watch them over and over again and never tire of them. Abigail Smith’s story is one of those for me. Her beauty, hope, and faith are so inspiring to see, and I can’t watch her without my eyes welling with tears. My heart resonates with knowing Jesus deeper through pain, and His kindness and goodness to meet us in those moments brings the most real peace I have ever experienced. Abby’s hope in God and life forever spent in relationship with Him is our ultimate HOPE, too.

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Hyper-IgM Syndrome: Charlie Osborn's Story of Hope

It is an honor to introduce you all to some new heroes of ours, the Osborn family. My brother-in-law actually introduced us to them, and after reading their blog, I am so humbled and filled with admiration for this family. Ashlee and Kenny are walking their son, Charlie, through Hyper-IgM Syndrome, an extremely rare immunodeficiency disorder that makes it difficult for his body to fight off certain types of infections and viruses.

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Eosinophilic Esophagitis (EoE): Our Journey of Hope [Part 2]

Around the 7 month mark in our journey to discover answers on why our daughter was still sick, we met with a truly amazing GI doctor. He was able to diagnose Audra’s condition: eosinophilic esophagitis (EoE), a relatively new disease that attacks the esophagus and is often aggravated by food allergies and intolerances. We were immediately plunged into a new world of elimination diets, endoscopies, new medications, allergy testing, and lots and lots of research on our part.

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Eosinophilic Esophagitis (EoE): Our Journey of Hope [Part 1]

The beginning days of parenting our daughter Audra were filled with all the delight of most first time parents. Audra’s first week home, we would tiptoe into her nursery and just stare at her tiny form. We were in complete awe of our little miracle and so full of thanks and amazement as we watched her grow and change. The way she saw the world and took in every moment showed us glimpses of her personality.

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